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Rare Disease Day
Results: 254

#	Item
141	Microsoft Word - Patricia Richardson Biography.docx Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-02-14 15:14:37 Health Progressive supranuclear palsy Rare Disease Day Richardson Jill Taylor Patricia Richardson Cognitive disorders Rare diseases
142	NEWS FROM NORD AN UPDATE FOR OUR MEMBERS AND FRIENDS FALL[removed]I AM 1 IN 10 Add to Reading List Source URL: rarediseases.org Language: English - Date: 2012-12-18 11:57:21 Rare Disease Day Rare diseases European Organization for Rare Diseases Orphan drug Genetic disorder Siren interactive National Organization for Rare Disorders Disease Adiposis dolorosa Health Medicine Epidemiology
143	The Food and Drug Administration (FDA) convened its first “fDA Rare Disease Patient Advocacy Day” on March 1, 2012 Add to Reading List Source URL: www.fda.gov. Language: English Clinical research Food and Drug Administration Drug discovery Pharmaceuticals policy Pharmaceutical industry Orphan drug Clinical trial Orphan Drug Act Criticism of the Food and Drug Administration Pharmaceutical sciences Pharmacology Health
144	RARE Patient Advocacy Summit Presented by Global Genes September 11-12, 2014 Conference Agenda A rare diagnosis changes everything. It crashes plans and dreams, knocks you off your feet, and Add to Reading List Source URL: globalgenes.wpengine.netdna-cdn.com Language: English - Date: 2014-08-07 19:15:05 FasterCures Family Patient advocacy Caregiver Rare disease Rare Disease Day National Institutes of Health Distress In cancer caregiving Medicine Health Medical ethics
145	www.eurordis.org Specialised Social Services: need, policy, case studies Lisen Julie Mohr Frambu-Resource Centre for Rare Disorders Add to Reading List Source URL: download.eurordis.org.s3.amazonaws.com Language: English - Date: 2013-06-11 11:35:23 Health care Medicine Science Rare Disease Day Health European Organization for Rare Diseases Rare disease
146	FDA Rare Disease Patient Advocacy Day Final Agenda Add to Reading List Source URL: www.fda.gov. Language: English Pharmaceutical sciences Pharmacology National Institutes of Health Pharmaceuticals policy Therapeutics Center for Drug Evaluation and Research Center for Biologics Evaluation and Research Expanded access Orphan drug Medicine Health Food and Drug Administration
147	2014 REPORT ON THE STATE OF THE ART OF RARE DISEASE ACTIVITIES IN EUROPE STATE OF THE ART OF RARE DISEASE ACTIVITIES IN SWITZERLAND This work was financed by the EUCERD Joint Action: Working for Rare Diseases N° [removed] Add to Reading List Source URL: www.eucerd.eu Language: English - Date: 2014-07-11 08:43:47 Health economics Medical terms Rare disease European Organization for Rare Diseases Rare Disease Day Orphan drug Orphanet Disease Inborn error of metabolism Health Medicine Epidemiology
148	De-hospitalization of the pediatric day surgery by means of a freestanding surgery center: pilot study in the lazio region Add to Reading List Source URL: amdapompe.ehclients.com Language: English - Date: 2013-07-21 20:13:54 Glycogen storage disease type II Hepatology Oropharyngeal dysphagia Motor neurone disease Dysphagia Swallowing Esophageal cancer Enzyme replacement therapy Aspiration pneumonia Medicine Health Rare diseases
149	FDA Rare Disease Patient Advocacy Day Frank J. Sasinowski, M.S., M.P.H., J.D. Chairman of the Board National Organization for Rare Disorders 1 Add to Reading List Source URL: www.fda.gov Language: English Pharmaceutical sciences Orphan drug Orphan Drug Act FDA Fast Track Development Program National Organization for Rare Disorders Pharmaceuticals policy Food and Drug Administration Health
150	List of Abbreviations FDA Rare Disease Patient Advocacy Day March 1, 2012 AC ACOMS ADI Add to Reading List Source URL: www.fda.gov Language: English Pharmaceutical sciences Adverse effect Investigational Device Exemption Federal Food Drug and Cosmetic Act Center for Drug Evaluation and Research New Drug Application Medical device Clinical trial Investigational New Drug Food and Drug Administration Medicine Health

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